Comments on: Jenny McCarthy Talks About Autistic Son

By: smellygirl

smellygirl — Sun, 07 Jun 2009 01:27:36 +0000

it is sad to see how snake-oil peddlers (homeopathic, naturopathic, alternative “doctors”) and conspiracy theorists (for example, the anti-vax crowd) will latch onto desperate mothers who are willing to try anything to help their autistic children. i can’t really blame these moms, but really, the sooner they face the facts, the better it will be for their kids. fake treatments waste money and time and may make you feel like you are doing something helpful, but in the long run get you nowhere.

By: Donna Morales

Donna Morales — Wed, 13 May 2009 04:37:10 +0000

Dear Jenny,
where do i start. i need Help. my son is 10 he is on medsand he is a highfunctioning autistic child. he cant read or do math because he is dislexic( sp) i cant work because i get calls from school to come get him, because he is throwing a tantrum. and now the final straw we are losing our home. as most autistic children he has major issues with change. my whole family has sacrificed to help myself my sons and my husband. and its never enough. i just cant take anymore . i need help i need to save this house. his mind is fragile. if i change the decore of the house (re arrange fruniture) its weeks and weeks of tantrums. what happens if we get foreclosed on? where will we go? what is going to happen to my boy?

By: Elise Krog

Elise Krog — Wed, 14 Jan 2009 11:15:35 +0000

There has been some great work done with an alternative treatment called LDN – From Jacquelyn McCandless, MD: LDN is low dose naltrexone, a generic, FDA-approved opiate antagonist that has been used widely in its regular doses to combat drug addiction for more than 20 years. At less than one tenth the usual dose, LDN has been found to be an effective immune system modulator that is non-toxic, non-addicting and inexpensive, with only a small capsule or small amount of transdermally applied cream once daily at bedtime needed. I originally wanted it for immune modulation/enhancement, but the first and most noticeable effects are an increased socialization and language facility for most children. The immune effects take longer to show up, and my studies showed that even after 16 weeks some markers were still not enhanced. Whether this is because it only helps certain aspects of the immune system or just takes longer for these changes to take place, the jury is still out – more testing is needed. However, some important immune markers were elevated in the majority of children tested, and a sizeable number of parents report improvement in overall health of their children.Â

Should you try it on your child?
Since LDN is non-toxic and inexpensive, I believe all autistic children should be given a trial to see how your child responds. There is no test to see who might benefit; a trial is the only way. About 15 percent may show hyperactivity and insomnia when first started; especially those who have not been on dietary restriction are more likely to have this side effect. This usually subsides by a week or less. Lowering the dose helps in some, restricting diet helps in others, and there are always a few who cannot tolerate it. It must be prescribed and in these tiny doses it must be compounded, as it normally comes only in 50 mg tablets.Â 75-80% of parents in our database report positive experiences, especially in children’s socialization and language. Anyone may join: the Autism_LDN Yahoo Group to check out other parents’ experiences in our database to help you in your decision to try it.

By: Jessica Bradley

Jessica Bradley — Tue, 27 Nov 2007 05:12:00 +0000

My son was diagnosed at 23 month’s. He has had 10 moths of early intensive behavioral treatment. He is on a GF/CF diet. He just started preschool today in a special autism preschool. He is now 3 year’s old. He also just recently had 2 seizure’s, Dr.’s said they were febrile. I followed up with all the tests. Any advice?

By: Graham Miles

Graham Miles — Thu, 11 Oct 2007 19:24:49 +0000

Thank you for what you have written. I can’t show you enough gratitude. Everything you have to do I already have in the making. Ian is still young yet for, probably, a complete reversal; I hope for his sake. I already several naturopathic doctors. I am waiting for a reply from those people who will be taking care of his health. I also found some stores that sell the proper food for him. Anyway, I could ramble on forever about Ian. He is in a special home for his problem and two of the other children already have a special diet. Ian is still being given the wrong foods; I checked that myself. His physician, dietition and his pediatrician are all wrong because they think they have the answers, but you and I know differently. They just never learned it and I think there is a little pride problem regarding their lack of knowledge and the knowledge of a naturalist. Perhaps one day all the doctors will share their respective patients with each other according to specialties and the country, or world, will be a better place for these kids.

Again
Thank you
Graham Miles

By: Graham Miles

Graham Miles — Mon, 08 Oct 2007 00:25:15 +0000

I am sorry to hear about you, Jenna Mccartneyh, et all but do not dispair. Try a naturapathic doctor. #Western medicine, doctors of any training do not understand autism at all. 70% to 80% of all western doctors are asking parents of autistic children who are still at home with the parents, to visit their doctors and explain their home treatments to these doctors; they doctors really want to know how these reversals are done.
I, too, have an autistic son who lives in a special home four hours away from me. I hardly ever see him. I have not money living in my home alone, divorced. Ian, autistic, has a brother, Joey, who lives with his mom. Joey is ok.
I’ll be getting into a $350 boarding house soon so that I can put the majority of my money into Ian, if the courts and Children’s Aid will allow it to happen. I was away, excorted, for one full year when my ex wife put both of our children in Children’s Aid and then foster care. I couldn’t take them; that’s the way they do it in Canada. 90% of the men lose their children.
IAN;
Gluten free and cassien free products are essential but mostly gluten free. Your child should be hair tested for heavy metals first to determine how much and exactly what type of metals are present – probably all twenty. Mercury is the worst; molecules or mercury attach themselves to about 97% of the human body. Chelation therapy and bentonite clay pawder at used to remove these metals. A regular diet of proper vitimins along with a supplement of omega 3 and omega 6 fatty acids, vitamin B12, selenium(check this one out first) and zinc. Zinc is removed when the heavy metals are removed and it is used effectively for the immune system therefore it must be injested again.
There is much more to know and I have done a tremendous amount of researth. Can these children be reversed? Yes, in many if not most cases depending on serverity and age. Find a naturapathic doctor see your child first as he/she is the only one who can put your child on the right track. The appointment will consist of testing and removing of heavy metals from the body with chelates and bentonite clay bath is used to remove heavy metals from the brain and nervous system. He/she will also explain about ‘leaky gut syndrome’ to you which is part & part of the problem. With this information I will leave you. If I can help in any other way please email me — gmiles@sympatico.ca —.

Graham and Ian Miles
PS: I have a feeling your young lad will be fine. Your next step will be getting him enrolled in a regular school and then the fun begins.

By: Marlene Pizzi

Marlene Pizzi — Sun, 07 Oct 2007 05:40:16 +0000

Jenny, I admire you very much and I wish that I was as capable of dealing with my son as you have proved to be.
My son is now 46 years old. He was diagnosed as Autistic when very few people had ever heard of it. He went into treatment at Bellevue Hospital Psych Ward for children when he was three years old. My ex-husband was a surgical resident at Bellevue at the time.
The marriage broke up when my son was about four years old but we were not divorced until he was 10. At that time my son was institutionalized and he has been in the same place now for 25 years. A few years ago he had a seizure and he has been failing in health ever since. I feel that the anti-seizure drugs that they are giving him are making him act out and are harming him greatly. The Psychaiatrists do not listen to me and just keep giving him more. I feel that I must get him help elsewhere but I am having great difficulty in this. I don’t know where to turn. They tell me at his place of residence that he is too violent to go anywhere else but I am not listening to them. I would appreciate any suggestions. My son is a beautiful man and I love him very much; I have tried my best but I get worn down.

By: gina1

gina1 — Tue, 02 Oct 2007 17:12:09 +0000

Yes, it is true that a diet alone won’t help many autistics kids, but it is a small thing to try to see if there will be benefits. I have a friend that won’t even try a change in diet at all. She says it won’t work. Well, isn’t it worth a try to see if it will help? If I was the parent of an autistic child I would be trying everything in my power to see what could help them.

By: kathy

kathy — Mon, 01 Oct 2007 23:53:50 +0000

I don’t think that people should take what Jenny is saying about autism to heart, yes maybe diet changed helped her son who is a high functioning autistic child to heart. Many families of children with autism have tried everything to bring their children out of their world and do not. She was lucky but so many families have a life long battle with this disorder that as majority of studies point to is genetic not from diet or vacinations

By: gerard Vandenberg

gerard Vandenberg — Thu, 20 Sep 2007 03:41:11 +0000

Hi there, Long Blond Animal. My Dicky is a bit Autistic, can you help me please?